Open access to biological data

Open Access logo WikipediaConsiderable moral and ethical arguments support the view that basic life science information constitutes a testament of human and natural evolution and advancement. As such, this wealth of knowledge should be freely available for all to access, study and process.

Open access to life science data is essential for advances in many areas of research. For example, it is crucial for:

  • understanding plant genomes in order to identify drought-, salt- and pest-resistant species
  • identifying patterns of genes that are active in different tumours
  • tracking transmission of diseases such as MRSA by identifying small variations in DNA sequence
  • identifying the targets of existing medicines against drug-resistant parasitic infections like Schistosomiasis
  • using DNA barcoding to catalogue life as a vital step in protecting endangered species and sustaining natural resources through pest control and accurate food labelling.

For researchers in academia as well as industry, open access to bioinformatics resources provides a valuable path to discovery, one that in many other areas of research is limited by commercial confidentiality.

It is therefore vital to maintain open access to biological data. This view is strongly supported by industry, which appreciates the pre-competitive value of accessing valuable data.* 

Data Protection

In order for Europe to remain compeititve in health and medical research it is crucial that the European Parliament's proposed amendment to the EU Data Protection Regulation is not included in the final bill. 

ELIXIR's position on the proposed EU Data Protection Regulation

Data Management

One of the key themes shared by all ESFRI BMS infrastructures is the generation of data and the need to have common principles for data management and sharing. Fourteen BioMedBridges partners have developed a joint statement on this, making key recommendations on how data management and sharing can be supported and encouraged.

Joint statement on principles of data management and sharing

*Data derived from individual humans is rarely completely open access for reasons of personal security and privacy, but providing secure access to such data is also a priority for future research